Empowering Innovation in Rare Diseases: European Support through EU4Health and Projects like DeCODe, ORPHADEV4KIDS & i4KIDS 4RARE
Gain insight into collaborative European strategies, best practices, and support mechanisms aimed at bridging the gap between research and implementation for rare paediatric conditions.
Training session focused on learning about three groundbreaking projects—DeCODe, ORPHADEV4KIDS, and i4KIDS-4RARE—who are working together to build a supportive ecosystem for rare diseases paediatric medical innovation across Europe, supported by the EU4Health Programme.
- Sandra Brasil, Scientific and Communications Manager at EPTRI, coordinator of the ORPHADEV4KIDS Project
- Anneliene Jonker, Assistant Professor, University of Twente and Coordinator of the DeCODe Project
- Sofía Ferreira, Innovation Manager, SJD Barcelona Children’s Hospital and Coordinator of the i4KIDS-4RARE Project
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