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Empowering Innovation in Rare Diseases: European Support through EU4Health and Projects like DeCODe, ORPHADEV4KIDS & i4KIDS 4RARE

Gain insight into collaborative European strategies, best practices, and support mechanisms aimed at bridging the gap between research and implementation for rare paediatric conditions.
i4KIDS-4RARE Training Capusle

Training session focused on learning about three groundbreaking projects—DeCODe, ORPHADEV4KIDS, and i4KIDS-4RARE—who are working together to build a supportive ecosystem for rare diseases paediatric medical innovation across Europe, supported by the EU4Health Programme.

  • Sandra Brasil, Scientific and Communications Manager at EPTRI, coordinator of the ORPHADEV4KIDS Project
  • Anneliene Jonker, Assistant Professor, University of Twente and Coordinator of the DeCODe Project
  • Sofía Ferreira, Innovation Manager, SJD Barcelona Children’s Hospital and Coordinator of the i4KIDS-4RARE Project
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